Video Gallery

Learn more about the remarkable history of The RYR-1 Foundation.

Learn more about RYR-1-related diseases.

Learn more about The RYR-1 Foundation's marquee event.

Learn more about Brentney Simon, Advisor of The RYR-1 Foundation, an individual affected by a RYR-1-related disease.

Learn more about Cody Hodgson (Advisor of The RYR-1 Foundation), a former NHL player and an individual affected by a RYR-1-related disease.

Learn more about Cody Hodgson (Advisor of The RYR-1 Foundation), a former NHL player and an individual affected by a RYR-1-related disease.

Learn more about this fundraiser, organized by Director Emily Pedersen.

Learn more about Malignant Hyperthermia from one of the world's leading experts, Dr. Sheila Riazi.

Learn more about the role of calcium in RYR-1-related diseases from one of the world's leading experts, Dr. Robert Dirksen.

Learn more about COVID-19 and RYR-1-related diseases from one of the world's leading experts, Dr. Oscar Hank Mayer.

Learn more about the role of calcium in RYR-1-related diseases from one of the world's leading experts, Dr. Robert Dirksen.

Learn more about Cody Hodgson and his work with The RYR-1 Foundation and the RYR-1-RD community.

Learn more about The RYR-1 Foundation's handbook for patients and families affected by RYR-1-related diseases.

Lecture from The RYR-1 Foundation International Family Conference 2022 on Sleep-Related Breathing Issues in RYR-1-RD by Dr. Jennifer Newitt.

Lecture from The RYR-1 Foundation International Family Conference 2022 on School-Based Services for Children with RYR-1-RD by Dr. Tammy Hughes.

Lecture from The RYR-1 Foundation International Family Conference 2022 on Respiratory Care in Neuromuscular Disease by Dr. Oscar Henry Mayer.

Lecture from The RYR-1 Foundation International Family Conference 2022 on Physical Therapy & Exercise Recommendations by Dr. Mina Jain.

Lecture from The RYR-1 Foundation International Family Conference 2022 on Psychological Concerns for Individuals with a Disability by Dr. Aviva Gaskill.

Lecture from The RYR-1 Foundation International Family Conference 2022 on RYR-1-Related Rhabdomyolysis by Dr. Nicol Voermans.

Lecture from The RYR-1 Foundation International Family Conference 2022 on "Gene Therapy Toolbox" for RYR-1-RD by Dr. Carsten Bonnemann.

Lecture from The RYR-1 Foundation International Family Conference 2022 on Genetics 101 by Livija Medne.

Lecture from The RYR-1 Foundation International Family Conference 2022 on How to Interpret Your RYR1 Genetic Testing Results by Dr. Angela Gruber.

Lecture from The RYR-1 Foundation International Family Conference 2022 on RYR-1, Calcium and Strength by Dr. Robert Dirksen.

Lecture from The RYR-1 Foundation International Family Conference 2022 on Fixing Leaky Ryanodine Receptors (RyR1) with a Rycal Drug by Dr. Andrew Marks.

Lecture from The RYR-1 Foundation International Family Conference 2018 on Myopathies and Muscular Dystrophies by Dr. Matthew Wicklund.

Lecture from The RYR-1 Foundation International Family Conference 2018 on Introduction to RYR-1-RD by Dr. Reghan Foley.

Lecture from The RYR-1 Foundation International Family Conference 2018 on Orthopaedic Considerations in RYR1 Myopathies by Dr. David Spiegel.

Lecture from The RYR-1 Foundation International Family Conference 2018 on How to Interpret your RYR1 Genetic Testing Results by Dr. Angela Gruber.

Lecture from The RYR-1 Foundation International Family Conference 2018 on Preventative Respiratory Care in Congenital Muscular Dystrophy by Dr. Hank Mayer.

Lecture from The RYR-1 Foundation International Family Conference 2016 on Malignant Hyperthermia by Dr. Ronald Litman.

Lecture from The RYR-1 Foundation International Family Conference 2016 on the Role of Calcium in RYR-1 Myopathy by Dr. Robert Dirksen.

Lecture from The RYR-1 Foundation International Family Conference 2016 on Introduction to RYR-1 Myopathy by Dr. James Dowling.

Lecture from The RYR-1 Foundation International Family Conference 2016 on What are Rycals by Dr. Andrew Marks.

Webinar with Dr. Michael Goldberg (Board President & Co-Chair of Research), Dr. Gene Marcantonio (CEO/CMO ARMGO Pharma), Dr. Payam Mohassel (Principal Investigator & SAB Member), & Dr. Joshua Todd (Lead Associate Investigator) discussing Rycals & the Rycal Clinical Trial Results