The RYR-1 Foundation International Family Conference 2016

The RYR-1 Foundation International Family Conference 2016


The first The RYR-1 International Family Conference took place in Baltimore, MD, USA and was a huge success! There were over 200 attendees, representing 75 RYR-1-Related Diseases (RYR-1-RD) affected individuals and families from 25 states and six countries. For many attendees, this was the first opportunity to meet someone else with their rare condition. It was also the first chance for most people to hear lectures and discuss their condition with some of the world’s leading experts in RYR-1-RD. This Family Conference would not have occurred without the leadership of The RYR-1 Foundation’s Director, Jeni Ryan. In addition, The RYR-1 Foundation is appreciative of our speakers and volunteers. Of course, what made this event so special was the opportunity for so many affected individuals and families to meet, form friendships, and develop a true RYR-1-RD community. 


The RYR-1 Foundation International Family Conference

2016 Lectures

View Recorded Lectures


2016 Family Conference Sponsors

The generosity of The Schooner Foundation allowed The RYR-1 Foundation to host the first Family Conference. The RYR-1 Foundation is extremely grateful for their support of the organization and for their vision for this meeting.

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