Patient Stories

As the 10th overall pick in the 2008 NHL Draft, Cody Hodgson had a bright career ahead of him in the NHL. Cody played for the Vancouver Canucks, Buffalo Sabres, and Nashville Predators over the course of a six-year career...

When Brentney was born in 1993, her parents noticed something was wrong right from birth. Doctors told her family that they did not think she would ever be able to walk or talk. Nevertheless, each and every day, Brentney has continued to exceed everyone’s expectations...

Jackson is a young boy with an RYR-1-related disease. He is currently unable to walk without assistance and is forced to alternate between a wheelchair and walker...

Nolan’s doctors noticed there was something wrong the moment he was born. His weakness at birth was so profound that it took Nolan several weeks to even open his eyes or move a finger...

GET INVOLVED

Donate
The RYR-1 Foundation is a non-profit, 501(c)(3), public charity--your donation is tax-deductible.
Host A Fundraiser
Thank you for your interest in raising funds to support The RYR-1 Foundation. Our success depends on the initiative of supporters like YOU.
Close close
Donate
Newsletter Registration