Congressional Advocacy
MAKE A DIFFERENCE - CONTACT YOUR LEGISLATORS
JOIN THE RYR-1 FOUNDATION AND THE RYR-1-RELATED DISEASES COMMUNITY IN THIS IMPORTANT ADVOCACY EFFORT
Now is a crucial time to advocate for vital funding for RYR-1-Related Diseases (RYR-1-RD) research funded through the National Institutes of Health (NIH). The RYR-1-RD community has the power to make a difference by advocating for this funding as budget discussions are already underway.
In addition, we are advocating that legislators support funding for the Department of Defense through the Congressionally Directed Medical Research Programs (CDMRP), specifically for research related to the impact of RYR-1-RD on individuals serving in the military.
We urge all members of the RYR-1-RD community to act now and contact your legislators. Your voice can help ensure the continuation of essential research!
How You Can Help:
- Send a letter or email to your House members and Senators.
- Use the template letter provided below for guidance.
- When you open the template letter, you’ll find detailed instructions on how to personalize it to best fit your needs.
- Contact members from your district or state that serve on the House Budget Committee and/or the Senate Budget Committee.
- Access the following links to find your representatives and senators:
Some legislators prefer emails with attachments, so feel free to upload your letter directly.
By advocating for this crucial funding, you are helping us strengthen our community and push for the resources we need for RYR-1-RD.
Thank you for making your voice heard!
Show Your Strength In Numbers!
For questions or more information, contact Patricia Raffaele.
