Contact Us
Drop Us A Line
Message To Visitors
The RYR-1 Foundation aims to be a resource for a variety of stakeholders including, affected individuals and families, pharmaceutical and biotech industries, researchers, healthcare providers, and donors. To contact us, please fill out the adjacent form or send us an email at info@ryr1.org.
Please Note: The RYR-1 Foundation is unable to provide medical advice, second opinions, or review or interpret medical records or testing results. We also do not provide medical consultations, diagnoses, or treatment recommendations.
If you have a medical question or concern, we encourage you to speak directly with your treating physician or another qualified healthcare professional who is familiar with your individual medical history.
You may also visit our Locate a Provider webpage to find a healthcare provider in your area.
How Your Donations Helps
How Your Donations Helps
Due to the support of our many generous benefactors, The RYR-1 Foundation’s work has led to important breakthroughs in scientific knowledge. In addition, The RYR-1 Foundation has formed a worldwide community of affected individuals who can find comfort and support in the knowledge that they are not alone and that our organization now exists to help them.
The need for treatments or a cure is urgent. With your support, The RYR-1 Foundation can continue to fund world-renowned scientists, expand the RYR-1-RD community, and make our slogan, “Strength in Numbers,” a reality.
