Improving the Lives of Individuals with RYR-1-Related Diseases
Your Gift Creates Hope
Every day The RYR-1 Foundation advances research, raises awareness, and supports individuals and families affected by RYR-1-Related Diseases (RYR-1-RD). Thanks to our generous donors, we’ve driven scientific discovery and built a global community united by hope and strength.
Your support provides essential resources—like International Family Conferences, Clinical Care Guidelines, and educational webinars—while also helping to facilitate clinical trials and host patient-led international research workshops. Together, these efforts connect families, researchers, and clinicians to accelerate progress toward effective treatments and, ultimately, a cure.
Your donation fuels world-class research, expands community resources, and turns our message—“Strength in Numbers”—into action.
Donate today to create hope, connection, and lasting change.
Thank you for supporting The RYR-1 Foundation!
Double Your Donation
Many employers offer matching gift programs that can double—or even triple—your impact.
Use the tool below to see if your company participates and make your contribution go even further!
More Ways to Give
There are many ways you can make a donation to The RYR-1 Foundation, including credit cards, checks, Donor-Advised Funds (DAFs), securities (stocks, bonds, mutual funds, etc.), payroll giving, and planned gifts such as wills, trusts, retirement accounts, or life insurance policies.
How Your Donation Creates Hope and Connection
The RYR-1 Foundation is transforming lives through research, awareness, and community. With the help of our generous supporters, we’ve driven scientific discovery and built a strong, global network of families affected by RYR-1-Related Diseases (RYR-1-RD).
Your support allows us to fund cutting-edge research and expand our outreach and resources—helping individuals and families affected by RYR-1-RD find information, support, and hope.
Together, we are “Strength in Numbers.”
Our Impact
Financial Transparency
Copies of The RYR-1 Foundation’s Form 990 tax information can be viewed on our Financial Transparency page or by clicking below.
Form 990 on Candid by GuideStar
The financial information of The RYR-1 Foundation may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1 (800) 732-0999. Registration does not imply endorsement.
