The RYR-1 Foundation International Family Conference Sponsorship Opportunities 2025
The RYR-1 Foundation International Family Conference 2025
July 24 – July 27, 2025
Hyatt Regency Pittsburgh International Airport
Pittsburgh, PA, USA
Become A Sponsor and Make A Difference Together!
Through the Family Conference Sponsorship Program, The RYR-1 Foundation offers an opportunity to organizations with shared interests to partner with us. As a sponsor of the Family Conference, your organization directly supports the work of The RYR-1 Foundation in providing advocacy and resources for the RYR-1-Related Diseases (RYR-1-RD) Community. Your organization also receives benefits that help you meet your goals, including joining a global community.
For more information about Sponsorship Opportunities, contact Patricia Raffaele.
About the International Family Conferences
The the first ever Family Conference was held in July 2016, the second Family Conference in July 2018, and the third Family Conference in July 2022. Combined, these events have hosted over 550 attendees, representing 150 RYR-1-Related Diseases (RYR-1-RD) affected individuals and families from ten countries. These Family Conferences are unique opportunities for affected individuals and families to meet, form friendships, and develop a true RYR-1-RD Community.
For a rare condition like RYR-1-RD, providing a forum for affected individuals and families to meet others like them has significant psychological value. When an affected individual or their family members seek to find someone else who understands what they are experiencing, a Family Conference becomes an invaluable and necessary resource. It is a goal of The RYR-1 Foundation to enhance and enrich these relationships within the RYR-1-RD Community.
For more information on the Family Conference, contact Lena Leghart.
