Patient Liaison

Lindsay Goldberg, BSN, RN, Executive Director & Patient Liaison: Lindsay has a BSN from the University of Michigan and is a registered nurse who formerly specialized in pediatric cardiac intensive care (10 years). She is a liaison between affected individuals/their families and physicians, genetic testing companies, and scientists. To schedule a call to discuss how The RYR-1 Foundation can serve as a resource for you and your family, please email her at lindsay@ryr1.org.