News

Welcome to our News web page. Here you will find The RYR-1 Foundation’s monthly newsletters, news/press releases, and pertinent medical journal articles.

There is growing medical literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.

PubMed RYR-1-RD Medical Journal Articles

Announcement of New Portuguese Translation of the Clinical Care Guidelines

The RYR-1 Foundation Co-Sponsors World Muscle Society Congress

Strength for Harper Jade Fundraiser Hosted by The Thomason Family

Miles for Maisie Fundraiser Hosted by The Woomer Family Raises Close to $50,000

The RYR-1 Foundation is excited to highlight a successful fundraiser hosted and led by the Woomer family of Lexington, Kentucky, Maisie Woomer and her family launched the Miles for Maisie Campaign to help raise awareness and gain support for those affected by RYR-1-related disease (RYR-1-RD). ...

ARMGO Pharma raises $35 million to progress clinical studies of lead molecule ARM210

ARMGO Pharma raises $35 million to progress clinical studies of lead molecule ARM210 in cardiac and skeletal muscle diseases ...

The RYR-1 Foundation Adds New Members to its Board of Directors and Board of Advisors

Dr. Robert Hanich and Mr. Bryan Heft will join as Directors and Mr. Winston Chung, Mr. Jinson Paul, and Ms. Mairéad Ryan will join as Advisors...

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