The RYR-1 Foundation Benefit Dinner & Screening of “Hodgson” Documentary
About
August 30, 2019- The RYR-1 Foundation, the only organization in the world that exists exclusively to serve the needs of and advocate for individuals with RYR-1 myopathy, hosted a Benefit Dinner and Screening of the “Hodgson” documentary on Tuesday, August 27, 2019 at 7:00 pm at Mad Mex Shadyside (220 S Highland Ave, Pittsburgh, PA 15206).
Supporters of The RYR-1 Foundation raised a total of $6,150 at the event. This total significantly exceeded the original goal of $5,000. The RYR-1 Foundation would like to thank everyone for their generosity and support.
“Hodgson” is a 20 minute documentary that profiles Cody Hodgson, a former star in the National Hockey League, who was forced to retire at the age of 26 due to complications of RYR-1 muscle disease.
All proceeds went towards The RYR-1 Foundation to support its efforts in finding a cure for this inherited condition.
“Hopefully, The RYR-1 Foundation and I can help to not only push for a cure, but also help the parents, patients, and families affected by RYR-1-related diseases now so that they can better understand their condition, take the appropriate precautions, and have a treatment available to them,” said Cody Hodgson.
“Because RYR-1 myopathy is so rare, The RYR-1 Foundation is not only supporting research to find a cure, but also attempting to raise awareness of this condition,” said Michael F. Goldberg, MD, MPH, President of The RYR-1 Foundation. “The recently produced “Hodgson” documentary does an incredible job of explaining how RYR-1 can affect a wide variety of individuals, including an elite athlete like Cody. The Mad Mex event was a great venue to demonstrate the important work of The RYR-1 Foundation.”
About The RYR-1 Foundation
The Pittsburgh, Pennsylvania-based public charity was launched in October 2014 by members of the Goldberg family, who have been affected by RYR-1 muscle disease. It is currently the only organization that exists solely to advocate for and serve the needs of patients with RYR-1 myopathy, the most common cause of congenital myopathy. The mission of the RYR-1 Foundation is to support research leading to effective treatment or a cure for RYR-1 related diseases, to educate physicians about these diseases, and to provide patient/family support and advocacy. The RYR-1 Foundation is a public charity, designated as a 501(c)(3) by the IRS.
The RYR-1 Foundation is appreciative of the sponsors for this event:
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