News & Articles

Welcome to our News & Article web page. Here you will find The RYR-1 Foundation’s monthly newsletters, news/press releases, and pertinent medical journal articles.

There is growing medical literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.

 

PubMed RYR-1-RD Medical Journal Articles

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The RYR-1 Foundation is excited to host the second "RYR-1 Virtual Run, Walk, or Roll!" Join us from wherever you are for this special event...

The third biennial RYR-1 International Family Conference will be held from July 22 - July 24, 2022, in Pittsburgh, PA, USA...

Authors: Mohammadsharif Tabebordbar, Kim A. Lagerborg, Alexandra Stanton, ..., Alan H. Beggs, Amy J. Wagers, Pardis C. Sabeti...

Author: Carsten G. Bonnemann...

"Clinical Care Guidelines" is written in non-technical, easily understood language to empower patients and families with RYR-1-related diseases to improve their quality of life...

The RYR-1 Foundation is excited to announce the publication of the second "Rare Disease Report" on RYR1-Related Diseases on the website of the National Organization for Rare Disorders (NORD)...

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