News
Welcome to our News web page. Here you will find The RYR-1 Foundation’s monthly newsletters, news/press releases, and pertinent medical journal articles.
There is growing medical literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.
Authors: Cedric R. Lamboley, Luke Pearce, Crystal Seng, Aldo Meizoso-Huesca, Daniel P. Singh, Barnaby P. Frankish, Vikas Kaura, Harriet P. Lo, Charles Ferguson, Paul D. Allen, Philip M. Hopkins, Robert G. Parton, Robyn M. Murphy, Chris van der Poel, Christopher J. Barclay, Bradley S. Launikonis...
The RYR-1 Foundation is excited to host the second "RYR-1 Virtual Run, Walk, or Roll!" Join us from wherever you are for this special event...
The third biennial RYR-1 International Family Conference will be held from July 22 - July 24, 2022, in Pittsburgh, PA, USA...
Authors: Mohammadsharif Tabebordbar, Kim A. Lagerborg, Alexandra Stanton, ..., Alan H. Beggs, Amy J. Wagers, Pardis C. Sabeti...
Author: Carsten G. Bonnemann...
"Clinical Care Guidelines" is written in non-technical, easily understood language to empower patients and families with RYR-1-related diseases to improve their quality of life...
