We are proud to announce that The RYR-1 Foundation was one of the co-sponsors of the 28th International Annual Congress of the World Muscle Society (WMS) that took place from October 3–7, 2023, in Charleston, South Carolina. This was a remarkable event that brought together more than 1,000 scientists and healthcare professionals from over 50 countries to share their knowledge and expertise on neuromuscular diseases. Attending this international conference from The RYR-1 Foundation were Dr. Mike Goldberg, Co-Founder and Board President; Lindsay Goldberg, Co-Founder and Business Manager/Patient Liaison; and John Gallo, Executive Director.
We also attended the poster presentations that were relevant to RYR-1-RD. This included two presentations that were co-authored by Dr. Mike Goldberg, and one presentation that was funded by The RYR-1 Foundation. Overall, we were impressed by the quality and diversity of the research projects and the collaborations between different institutions and countries. In addition, we had the opportunity to meet with some of the researchers who have received grant funding from The RYR-1 Foundation and express our gratitude for their valuable contributions to the field.
One of the highlights of the WMS Congress was the dinner The RYR-1 Foundation sponsored for members of our Scientific Advisory Board (SAB) and other clinicians we collaborate with. At this dinner were some of the leaders in the field of neuromuscular diseases, including Drs. Carsten Bönnemann, Alan Beggs, and Heinz Jungbluth. In addition, a member of the Board of Advisors, Brentney Simon, who resides in the Charleston area, was also able to join us. These dedicated researchers and professionals from all around the world are deeply committed to advancing the work we do.
Lastly, Lindsay and Mike Goldberg had dinner with Drs. Angela and Monkol Lek. Dr. Monkol Lek is Assistant Professor of Genetics at Yale University School of Medicine and Dr. Angela Lek is Vice President of Research at the Muscular Dystrophy Association (MDA), and this dinner was an invaluable opportunity to discuss ways in which the MDA and The RYR-1 Foundation can work together to accelerate research and advance care as well as learning about new technologies to potentially cure/treat neuromuscular diseases.
We are very thankful for the many new connections we have made, for conversations with new potential providers, and for the future opportunities that await!
The RYR-1 Foundation Staff interacting with genetic counselor Livija Medne (SAB member)
Lindsay Goldberg and Dr. Mike Goldberg interacting with healthcare providers
“A poster presentation that was based on a research grant that The RYR-1 Foundation funded.”
Members of The RYR-1 Foundation team, SAB, Board of Advisors, and other researchers and clinicians
Drs. Angela & Monkol Lek at dinner with Lindsay Goldberg and Dr. Mike Goldberg