Partner with Us: Advancing Research and Treatments for RYR-1-Related Diseases
The RYR-1 Foundation is dedicated to advancing research, treatments, and awareness for RYR-1-related diseases (RYR-1-RD), a group of rare neuromuscular diseases caused by mutations in the RYR1 gene. We are actively seeking partnerships with innovative biotech companies, pharmaceutical companies, researchers, healthcare organizations, and other neuromuscular organizations that share our commitment to improving the lives of individuals and families affected by these umbrella of diseases.
Why Partner with The RYR-1 Foundation?
- Collaborative Research Initiatives: As a leader in the RYR-1-RD community, we are dedicated to supporting groundbreaking research, clinical trials, and novel therapeutic approaches. By partnering with The RYR-1 Foundation, your organization will have the opportunity to contribute to the development of life-changing treatments and accelerate the path to a cure.
- Access to a Dedicated Community: The RYR-1 Foundation serves a vibrant and engaged community of patients, families, healthcare providers, and researchers who are deeply invested in advancing the understanding and treatment of RYR-1-RD. Our international network provides a unique platform to collaborate and reach those directly impacted by RYR-1-RD.
- Scientific Advisory Board & Expertise: Our esteemed Scientific Advisory Board (SAB) consists of world-renowned experts in the field of neuromuscular diseases, including RYR-1-RD. Our partners gain direct access to this network of thought leaders, facilitating collaboration and accelerating research efforts.
- Increased Visibility & Impact: Through joint initiatives, your company will gain visibility within the RYR-1-RD community, with recognition through our conferences, workshops, webinars, and other educational efforts. Together, we can make a meaningful impact on research, treatments, and advocacy for RYR-1-RD.
Partnership Opportunities
We offer a variety of partnership opportunities, including:
- Clinical Trials & Research Studies: Collaborate with us to design and support clinical trials and other research initiatives aimed at advancing new treatments for RYR-1-RD.
- Funding for Research: Help us fund innovative research through strategic sponsorship or joint funding initiatives, enabling the continued growth of critical research into RYR-1-RD.
- Family Conferences & Workshops: Partner with us to support and participate in the International Family Conferences and RYR-1-RD Patient-Led Research Workshops. These events bring together the RYR-1-RD community, offering networking opportunities and showcasing the latest scientific advancements.
How to Get Involved
If your organization is interested in partnering with The RYR-1 Foundation, we invite you to reach out. Together, we can create meaningful change for individuals and families affected by RYR-1-RD. Please reach out to us at info@ryr1.org to explore partnership opportunities. We look forward to discussing how we can work together to advance research and make Strength In Numbers a reality for the RYR-1-RD community.
