Jennifer Ryan, MBA

Jeni is a Trustee of the Schooner Foundation and has an MBA in Operational Management from Simmons College. She is the former COO of Integral Resources, a telemarketing firm specializing in small donor acquisition for nonprofits. Both she and her daughter have Central Core Disease (CCD), an RYR-1-related disease that is due to a mutation in the RYR1 gene.

Jeni is also the Chair of the 2025 RYR-1-RD International Family Conference Planning Committee. Her passion for bringing the RYR-1-RD community has been a cornerstone of her presence within The RYR-1 Foundation.