Lindsay Goldberg, BSN, RN

Lindsay is also a co-founder of The RYR-1 Foundation. She serves as an advocate for the RYR-1-RD community and liaison between affected individuals/their families and physicians, genetic testing companies, and scientists. She has a BSN from the University of Michigan and spent the first 10 years of her career as a bedside registered nurse specializing in pediatric cardiac intensive care (CICU).

“The RYR-1 Foundation has a very special place in my heart as a co-founder and family member of an affected individual. As a nurse, I have seen firsthand how important it is to have an organization that supports individuals and families affected by a specific disease.”