Patricia Raffaele, M.A., CAE

Pat joined The RYR1-Foundation in February 2024 as the Development, Public Relations, & Research Director. She holds a Master’s degree in Corporate Communications, and a Bachelor’s degree in Journalism, both from Duquesne University. She is also a Certified Association Executive through the American Society of Association Executives.

With her background in healthcare associations and nonprofit organizations, she brings experience in development, communications, advocacy, and governance. In her role at The RYR-1 Foundation, she focuses on development to support the mission of the organization; communications to “tell the story” of The RYR-1 Foundation and those it serves; and manages the research grant program.

Pat is passionate about the mission of The RYR-1 Foundation and is excited to bring her experience to support its work with researchers throughout the world; families and individuals affected by RYR-1-related diseases; and the medical community.