The RYR-1 Foundation International Family Conference 2025
Overview
This year marked the fourth RYR-1 Foundation International Family Conference, held in Pittsburgh, Pennsylvania, from July 24–27, 2025! Nearly 200 attendees from 12 countries came together for three unforgettable days filled with connection, education, and inspiration. With 25 expert speakers and an atmosphere brimming with hope and momentum, the event was an incredible success.
This memorable experience would not have been possible without the generous support of our sponsors: RyCarma Therapeutics, Inc., Eagle Pharmaceuticals, G3 Fabrication LLC, SMGG (Strassburger, McKenna, Gutnick & Gefsky), DF Dent, PNC Bank, and Grossman Yanak & Ford LLP. We are also deeply grateful to our individual donors, dedicated volunteers, and world-renowned speakers who helped make the Family Conference truly special.
The outstanding level of support and engagement reflects not only the impact of the Family Conference itself, but also The RYR-1 Foundation’s growing role as a global leader in the fight against neuromuscular diseases—particularly RYR-1-related diseases.
2025 Family Conference Program
