The RYR-1 Foundation International Family Conference 2025

Overview
This year marked the fourth The RYR-1 Foundation International Family Conference in Pittsburgh, Pennsylvania, from July 24–27, 2025! Nearly 200 attendees from 12 countries came together for three unforgettable days of connection, learning, and inspiration. With 25 expert speakers and an atmosphere full of hope and momentum, the event was a tremendous success.
This incredible experience wouldn’t have been possible without the outstanding support of our generous sponsors: RyCarma Therapeutics, Inc., Eagle Pharmaceuticals, G3 Fabrication LLC, SMGG (Strassburger, McKenna, Gutnick & Gefsky), DF Dent, PNC Bank, and Grossman Yanak & Ford LLP. We’re also deeply grateful to our dedicated volunteers and world-renowned speakers who made the conference shine. This level of support underscores not only the impact of the Family Conference, but also the organization’s growing status as a global leader in the fight against neuromuscular disease.
2025 Family Conference Program