News & Articles
Welcome to our News & Article web page. Here you will find The RYR-1 Foundation’s monthly newsletters, news/press releases, and pertinent medical journal articles.
There is growing medical literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.
A research project that received seed funding from The RYR-1 Foundation was presented at the Muscular Dystrophy Association (MDA) Annual Conference in Dallas, Texas, March 19-22, 2023. ...
The Board of Directors, Board of Advisors, and Scientific Advisory Board play critical roles in advancing the mission of The RYR-1 Foundation...
The RYR-1 Foundation is excited to host the second "RYR-1 Virtual Run, Walk, or Roll!" Join us from wherever you are for this special event...
The third biennial RYR-1 International Family Conference will be held from July 22 - July 24, 2022, in Pittsburgh, PA, USA...
"Clinical Care Guidelines" is written in non-technical, easily understood language to empower patients and families with RYR-1-related diseases to improve their quality of life...
The RYR-1 Foundation is excited to announce the publication of the second "Rare Disease Report" on RYR1-Related Diseases on the website of the National Organization for Rare Disorders (NORD)...
