News & Articles
Welcome to our News & Article web page. Here you will find The RYR-1 Foundation’s monthly newsletters, news/press releases, and pertinent medical journal articles.
There is growing medical literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.
Dr. Robert Hanich and Mr. Bryan Heft will join as Directors and Mr. Winston Chung, Mr. Jinson Paul, and Ms. Mairéad Ryan will join as Advisors...
A research project that received seed funding from The RYR-1 Foundation was presented at the Muscular Dystrophy Association (MDA) Annual Conference in Dallas, Texas, March 19-22, 2023. ...
The Board of Directors, Board of Advisors, and Scientific Advisory Board play critical roles in advancing the mission of The RYR-1 Foundation...
The RYR-1 Foundation is excited to host the second "RYR-1 Virtual Run, Walk, or Roll!" Join us from wherever you are for this special event...
The third biennial RYR-1 International Family Conference will be held from July 22 - July 24, 2022, in Pittsburgh, PA, USA...
"Clinical Care Guidelines" is written in non-technical, easily understood language to empower patients and families with RYR-1-related diseases to improve their quality of life...
