News
Welcome to our News web page. Here you will find The RYR-1 Foundation’s monthly newsletters, news/press releases, and pertinent medical journal articles.
There is growing medical literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.
It's a 20 minute documentary that profiles Cody Hodgson, a former star in the NHL, who was forced to retire at the age of 26 due to complications of an RYR-1-related disease...
There have been three recent and exciting developments and additions that demonstrate the continued progress of The RYR-1 Foundation and its reach...
The RYR-1 Foundation and Toronto-native Cody Hodgson are proud to present a “First Look” screening of the upcoming documentary "Hodgson" at the Hilton Toronto/Markham Suites...
The Scientific Advisory Board is responsible for setting the research priorities of The RYR-1 Foundation and determining which research grant applications receive funding...
The RYR-1 Foundation and ZNM-Zusammen Stark e. V. are excited to announce a collaboration to further their shared interest in helping congenital muscle disease victims...
The RYR-1 Foundation is very excited to announce the publication of the first "Rare Disease Report" on RYR-1-Related Diseases on the website of the National Organization for Rare Disorders (NORD)...
