RYR-1-Related Diseases Patient-Led International Research Workshop Sponsorship Opportunities 2025
2025 RYR-1-Related Diseases Patient-Led International Research Workshop: Novel Perspectives, Treatments & Interventions
July 23 – July 24, 2025
Hyatt Regency Pittsburgh International Airport
Pittsburgh, PA, USA
Become A Sponsor and Make A Difference Together!
Through the Patient-Led International Research Workshop Sponsorship Program, The RYR-1 Foundation offers an opportunity to organizations with shared interests to partner with us. As a sponsor of the Patient-Led International Research Workshop, your organization directly supports the work of The RYR-1 Foundation in finding a cure for RYR-1-Related Diseases (RYR-1-RD). Your organization also receives benefits that help you meet your goals, including joining a global community.
For more information on Sponsorship Opportunities, contact Patricia Raffaele.
Workshop Sponsorship Opportunities
About RYR-1-RD Patient-Led International Research Workshops
The RYR-1 Foundation will be hosting its second RYR-1-RD Patient-Led International Research Workshop at the Hyatt Regency Pittsburgh International Airport. The Research Workshop will immediately precede The RYR-1 Foundation International Family Conference 2025.
The Research Workshop will bring together an international group of experts, researchers, medical professionals, trainees, and affected families focused on RYR-1-Related Diseases (RYR-1-RD) to share knowledge and exchange ideas.
Planning the Research Workshop are the Co-Directors, composed of members of The RYR-1 Foundation’s Board of Directors, Board of Advisors, and the Scientific Advisory Board. The Co-Directors are: Michael F. Goldberg, MD, MPH; Johanna Lanner, PhD; Livija Medne, MS, LCGC; Payam Mohassel, MD; Jinson Paul, MBA; Emily Pedersen; and Mairéad Ryan, BS, V27.
Testimonials from patients and families from the RYR-1-RD Community, a key part of the Research Workshop, will be featured in each session. The agenda sessions are: Diagnosis & Genetics of RYR-1-RD; Clinical Trial Readiness; Novel Insight into RyR1 Interplay and Cell Pathophysiology; RyR1 and Knowledge Gained from Animal Models; and Therapeutic Pipeline.
This Research Workshop is by invitation only and a limited number of people can be accommodated. A manuscript will be produced from the 2025 Research Workshop and will be shared publicly following the Research Workshop.
For more information on the Research Workshop, contact Lena Leghart.
