RYR-1-Related Diseases Patient-Led International Research Workshop Sponsorship Opportunities 2025

RYR-1-Related Diseases Patient-Led International Research Workshop Sponsorship Opportunities 2025

2025 RYR-1-Related Diseases Patient-Led International Research Workshop: Novel Perspectives, Treatments & Interventions

July 23 – July 24, 2025
Hyatt Regency Pittsburgh International Airport
Pittsburgh, PA, USA

 

Become A Sponsor and Make A Difference Together!

Through the Patient-Led International Research Workshop Sponsorship Program, The RYR-1 Foundation offers an opportunity to organizations with shared interests to partner with us. As a sponsor of the Patient-Led International Research Workshop, your organization directly supports the work of The RYR-1 Foundation in finding a cure for RYR-1-Related Diseases (RYR-1-RD). Your organization also receives benefits that help you meet your goals, including joining a global community.

For more information on Sponsorship Opportunities, contact Patricia Raffaele.

Workshop Sponsorship Opportunities 

 

About RYR-1-RD Patient-Led International Research Workshops

The RYR-1 Foundation will be hosting its second RYR-1-RD Patient-Led International Research Workshop at the Hyatt Regency Pittsburgh International Airport. The Research Workshop will immediately precede The RYR-1 Foundation International Family Conference 2025.

The Research Workshop will bring together an international group of experts, researchers, medical professionals, trainees, and affected families focused on RYR-1-Related Diseases (RYR-1-RD) to share knowledge and exchange ideas.

Planning the Research Workshop are the Co-Directors, composed of members of The RYR-1 Foundation’s Board of Directors, Board of Advisors, and the Scientific Advisory Board. The Co-Directors are: Michael F. Goldberg, MD, MPHJohanna Lanner, PhDLivija Medne, MS, LCGCPayam Mohassel, MDJinson Paul, MBAEmily Pedersen; and Mairéad Ryan, BS, V27.

Testimonials from patients and families from the RYR-1-RD Community, a key part of the Research Workshop, will be featured in each session. The agenda sessions are: Diagnosis & Genetics of RYR-1-RD; Clinical Trial ReadinessNovel Insight into RyR1 Interplay and Cell PathophysiologyRyR1 and Knowledge Gained from Animal Models; and Therapeutic Pipeline.

This Research Workshop is by invitation only and a limited number of people can be accommodated. A manuscript will be produced from the 2025 Research Workshop and will be shared publicly following the Research Workshop.

For more information on the Research Workshop, contact Lena Leghart.

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