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News and Events

Welcome to our News and Events section. Here you will find The RYR-1 Foundation’s news releases as well as pertinent Medical Journal Articles.

There is growing literature on RYR-1-related diseases. Please email info@ryr1.org if there are articles that you think would be valuable to post here. Click here for the most recent articles on Pubmed.

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Health Issues Forced Cody Hodgson to Retire From Hockey at 26. Eight Years Later, He’s Playing Again
Health Issues Forced Cody Hodgson to Retire From Hockey at 26. Eight Years Later, He’s Playing Again

The RYR-1 Foundation Opens New Grant Application in Honor of Rare Disease Day
The RYR-1 Foundation Opens New Grant Application in Honor of Rare Disease Day

Lindsay Goldberg, BSN, RN Appointed As Executive Director
Lindsay Goldberg, BSN, RN Appointed As Executive Director

Comparison of Literature Mining Tools for Variant Classification: Through the Lens of Fifty RYR1 Variants
Comparison of Literature Mining Tools for Variant Classification: Through the Lens of Fifty RYR1 Variants

The RYR-1 Foundation Celebrates Breakthrough Results from Phase 1b Clinical Trial on RYR1-Related Myopathies
The RYR-1 Foundation Celebrates Breakthrough Results from Phase 1b Clinical Trial on RYR1-Related Myopathies

Successful Correction by Prime Editing of a Mutation in the RYR1 Gene Responsible for a Myopathy
Successful Correction by Prime Editing of a Mutation in the RYR1 Gene Responsible for a Myopathy

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