Patient & Family Resources

Due to the rarity of RYR-1-related diseases, receiving this diagnosis can be an anxiety-provoking and isolating experience for an affected patient and their families.

The RYR-1 Foundation serves as a resource for patients and their families through this website, social media, and RYR-1 International Family Conferences.

GET INVOLVED

Donate
The RYR-1 Foundation is a non-profit, 501(c)(3), public charity--your donation is tax-deductible.
Host A Fundraiser
Thank you for your interest in raising funds to support The RYR-1 Foundation. Our success depends on the initiative of supporters like YOU.
Close close
Donate
Newsletter Registration