Patient & Family Resources

Due to the rarity of RYR-1-related diseases, receiving this diagnosis can be an anxiety-provoking and isolating experience for an affected patient and their families.

The RYR-1 Foundation serves as a resource for patients and their families through this website, social media, and RYR-1 International Family Conferences.


The RYR-1 Foundation is a non-profit, 501(c)(3), public charity--your donation is tax-deductible.
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