News

Welcome to our News web page. Here you will find The RYR-1 Foundation’s monthly newsletters, news/press releases, and pertinent medical journal articles.

There is growing medical literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.

 

PubMed RYR-1-RD Medical Journal Articles

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The RYR-1 Foundation is excited to announce that it raised over $150,500 from its “End-of-the-Year” campaign...

There are now versions of the document translated into the following languages: Arabic, Chinese (Simplified), English, French, German, Spanish, and Vietnamese...

Dr. Mohassel is an adult neurologist and neuromuscular specialist...

The RYR-1 Foundation is excited to announce the publication of the Clinical Care Guidelines: ​What Patients & Families Need to Know About RYR-1-Related Diseases...

This grant will fund their continued research of recently developed mice with RYR-1-Related Diseases (RYR-1-RD)...

In October 2019, The RYR-1 Foundation celebrated its fifth year of existence. It’s sometimes hard to believe everything that has been accomplished during this relatively short period of time...

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