News & Articles
Welcome to our News & Article web page. Here you will find The RYR-1 Foundation’s monthly newsletters, news/press releases, and pertinent medical journal articles.
There is growing medical literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.
The RYR-1 Foundation is excited to announce the publication of the second "Rare Disease Report" on RYR1-Related Diseases on the website of the National Organization for Rare Disorders (NORD)...
The RYR-1 Foundation is excited to announce that it raised over $150,500 from its “End-of-the-Year” campaign...
There are now versions of the document translated into the following languages: Arabic, Chinese (Simplified), English, French, German, Spanish, and Vietnamese...
Dr. Mohassel is an adult neurologist and neuromuscular specialist...
The RYR-1 Foundation is excited to announce the publication of the Clinical Care Guidelines: What Patients & Families Need to Know About RYR-1-Related Diseases...
This grant will fund their continued research of recently developed mice with RYR-1-Related Diseases (RYR-1-RD)...
