News and Events
Welcome to our News and Events section. Here you will find The RYR-1 Foundation’s news releases as well as pertinent medical journal articles.
There is growing literature on RYR-1-Related Diseases (RYR-1-RD). Please email info@ryr1.org if there are articles that you think would be valuable to post here. The most recent medical journal articles can be found on PubMed below.
The Board of Directors, Board of Advisors, and Scientific Advisory Board play critical roles in advancing the mission of The RYR-1 Foundation...
The RYR-1 Foundation is excited to host the second "RYR-1 Virtual Run, Walk, or Roll!" Join us from wherever you are for this special event...
The third biennial RYR-1 International Family Conference will be held from July 22 - July 24, 2022, in Pittsburgh, PA, USA...
"Clinical Care Guidelines" is written in non-technical, easily understood language to empower patients and families with RYR-1-related diseases to improve their quality of life...
The RYR-1 Foundation is excited to announce the publication of the second "Rare Disease Report" on RYR1-Related Diseases on the website of the National Organization for Rare Disorders (NORD)...
The RYR-1 Foundation is excited to announce that it raised over $150,500 from its “End-of-the-Year” campaign...
