News and Events

Welcome to our News and Events section. Here you will find The RYR-1 Foundation’s press releases as well as pertinent Medical Journal Articles.


There is growing literature on RYR-1-related diseases. Please email if there are articles that you think would be valuable to post here. Click here for the most recent articles on Pubmed.

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ARMGO Pharma raises $35 million to progress clinical studies of lead molecule ARM210 in cardiac and skeletal muscle diseases ...

The Board of Directors, Board of Advisors, and Scientific Advisory Board play critical roles in advancing the mission of The RYR-1 Foundation...

The RYR-1 Foundation is excited to host the second "RYR-1 Virtual Run, Walk, or Roll!" Join us from wherever you are for this special event...

The third biennial RYR-1 International Family Conference will be held from July 22 - July 24, 2022, in Pittsburgh, PA, USA...

"Clinical Care Guidelines" is written in non-technical, easily understood language to empower patients and families with RYR-1-related diseases to improve their quality of life...

The RYR-1 Foundation is excited to announce the publication of the second "Rare Disease Report" on RYR1-Related Diseases on the website of the National Organization for Rare Disorders (NORD)...

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